So with all the crap hitting the fan over the past 4½ weeks, maybe it's time to stop and count my blessings.
- My son is alive, and is getting his symptoms cared for (even if they can't cure the disease).
- We live in the suburbs of the city that has one of the best children's hospitals available. (We've met people from as far away as Hawaii, who are staying in the Ronald McDonald house while their child gets treatment here. While we may not be spending much time at home, we can at least go home every day to get clothes, supplies, check on the pets, …)
- I am employed full-time (not on hourly contract), at a small technology company that has been more than accommodating to my very unpredictable schedule, including my rather reduced hours (although I intend on working some this weekend to catch up on some work, they've accepted my 6- and 7-hour days without complaint). (I'm sure it helps that I'm still meeting deadlines and getting work done.)
- My job is only a few blocks from where my kids go to school, and so it is very easy for me to pick my older son up and bring him here, where he can do his homework and play his Nintendo DSi until it's time to go. Additionally:
- my workplace is ok with this arrangement
- I have an office, so I have space for him to be in
- My church has been there to provide meals for us, and to take our toddler off the hands of my wife for the day, so he's not confined to the hospital room every single day.
- GeezerGamers.com — I've been a part of this community for a little over four years now, and the outpouring of support and prayers from these people have given me a huge morale boost I didn't realize I needed. And on top of that, they've also sent me and my son some Amazon gift cards and a care package that included a new Xbox memory card (to replace the one that "mysteriously" disappeared from the hospital room this past weekend). They've been an awesome group of friends, more than I ever expected or ever thought (or hoped, at least in this way) I'd need.
Hopefully the hospital stay is coming to an end. Although the doctors still haven't figured out The Problem for which they can prescribe The Cure, they have at least eliminated enough major issues that they're considering sending us home. He'll still be on medication (they've started switching his IV-based medicines to pill form), and as long as he shows he can eat and drink enough to sustain himself without IV supplements, if his white blood cell count recovers from one of the medicines he was on, and if nothing else major comes up, we may be taking him home next week (a "mere" 5 weeks after he was admitted).
Sure, we'd still need to bring him in for some tests rather regularly (and they may leave his PICC line in while he is coming back for tests), but even if we had to spend, say, 4 hours a day every day going back and forth to the hospital for tests, that's still 20 more hours a day he'd have at home than he has now. And that's another blessing worth counting.